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Snuggled on the sofa with grins lighting up their faces, twin brothers Luis and Kian King look like they haven’t got a care in the world.

But nine months ago the deadly disorder Juvenile Krabbe disease was destroying their nervous system.

The disease, which affects just one in a million children, was stealing their ability to walk, talk, eat and breathe and doctors warned they had just five years to live.

Their one hope was a stem cell transplant that had only been used to treat the condition once before in the US.

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