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Krabbe disease, Kenan Spencer and Natasha Spencer, Illinois

Kenan’s Story: Krabbe Disease

News that Illinois babies will “finally” be screened for Krabbe disease has been received with delight and relief all over the world. Krabbe disease can be treated with cord blood, but is rarely diagnosed in time for treatment to be effective. For Natasha Spencer, mother of Krabbe disease sufferer...

Stem cell transplant for Leicestershire twins with Krabbe Disease

Twin boys from Leicestershire are to thought to be the first children in England to receive a stem cell transplant for an incurable disease. Seven-year-olds Luis and Kian King have the rare Juvenile-onset Krabbe Disease, which causes loss of motor skills and severely shortens life expectancy. A database of...